for an explanation of my rating system.
Links: Forums and Chat Pages
MS is often an isolating
disease. Many people with MS find enormous solace from these forums and
often make very good friends there. People even find partners. There is
nothing quite like meeting other people with MS. We have a massive common
bond of understanding. We have all confronted the fears and difficulties
that the disease and its diagnosis presents.
There are quite a
number of forums and chat pages that concentrate on supporting people with
MS. The problem comes in deciding which one(s) to set up in. They all have
a different feel and emphasis. The popular ones have more people, more
posts and a greater range of experience but the smaller ones often have
a greater "family" appeal. My advice is to read a few posts before deciding
which to make your "home".
a popular USENET newsgroup that focuses on supporting people with MS. A
Flame wars break out every so often but overall it's a supportive place
to hang out. People are very willing to help out with questions and concerns.
Often abbreviated to ASMS. No registration needed. The group has an English and
Spanish FAQ and an index of other information.
Harvard Brain Talk - Multiple Sclerosis forum
This is a popular moderated,
web page based forum. Rather less infighting than on ASMS but overall a
similar scope. Registration is only required for posting and is free.
Forums of the Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation Forums offer an opportunity to
address your MS-related questions in different ways, through
the Ask the Doctor where fully qualified medical professionals will answer your questions,
MSFriends where you can talk to other people with MS
and MSFrontiers Travel where you can discuss issues surrounding travelling with MS.
MedSupport FSF International Forum/Chat
A offshoot of MedSupport
Friends Supporting Friends International, this web page based, Delphi hosted,
moderated forum provides a supportive, stress-free and flame-free online environment
where you can discuss all manner of MS related issues. Registration is required but is free.
Jooly's Joint - people with Multiple Sclerosis (MS) supporting each other
A wide range of forums
and chat pages here. Jooly has put a lot of work into her MS WebPals project
and has won numerous accolades as a result.
Principally an email based support group with some online browsing of
messages. Founder Jayne Alder posts MS news articles on a very regular
Another USENET newsgroup
which focuses on people with MS in the UK. A few people from elsewhere
visit but has far fewer posts than the above forums. No registration.
MS Central Support
A offshoot of Multiple
Sclerosis Central, this is another Delphi hosted, web page based, moderated
forum which also offers chatrooms. Registration is free.
Multiple Sclerosis (MS) Chat Rooms, Forums and eMail Discussion Lists
James Huggins' list of links to forums and chat pages.
Archives of MSLIST-L@TECHUNIX.TECHNION.AC.IL
MS-LIST used to
be cross-linked to alt.support.mult-sclerosis
but has since lost that ability due to lack of funding/technical support.
It still limps on through the valiant efforts of its dedicated support
Google bought Deja News in Febuary 2001 and it took them a while to get it up and
running but it now appears to be fully functional. Google Groups allows both posting and
searching of the entire of USENET going back to the year dot via a web browser.
Google Groups hosts a number of USENET groups such as alt.support.mult-sclerosis
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